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Narcolepsy and Idiopathic Hypersomnia Survey
The European Narcolepsy Alliance for Patients (eNAP) is asking patients with N or IH around Europe to complete this questionnaire in advance of this year's European Narcolepsy Days (END) congress (19-20th of November). We also ask doctors/clinicians to fill in a simular survey. Our aim is to compare the patients' and doctors'/clinicians' points of view.

Your anonymous results will be compared with what the doctors believe is important to people with N/IH and used as a talking point to ensure the patients' voice is heard and understood. 
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I am a...
I live in.....
My age is.....
What do you consider to be the worst symptom or most negative aspect of having N/IH?
What do you consider to be the second worst symptom or second most negative aspect of having N/IH?
What do you consider to be the third worst symptom or third most negative aspect of having N/IH?
To what degree does N/IH have an impact on the following aspects of your life?  
*
Very much
Not so much
Not at all
Self esteem
Isolation / social life
Intimacy / sex
Work / education
Independence
Hobby / sports
Getting or having a partner / family

What professional assistance helps you in living with N/IH? (multiple choices possible)

What additional professional assistance do you think could be helpful in living with N/IH? (multiple choices possible)

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